Showing posts with label Linda Lee M.D.. Show all posts
Showing posts with label Linda Lee M.D.. Show all posts

Sunday, July 11, 2010

hello everybody,
i cannot express my apologies that i haven't posting for a month now. things have been hectic and ive been so very busy. but an update for ya, last wednesday we traveled down again to baltimore to go see the lovely Dr Linda Lee. She was great and was so happy to hear of my progress. I've gained 3 pounds and have been eating regularly. but lately i have been in a terrible two week slump of feeling nothing but crappp. all in all she seemed exstatic about my progress and suggested me re-trying phenergan. it is an anti nausea medicine ive used before, but it just made me too sleeppy with little effects. so im going to give it a try again and see what'll happpen.
she also suggested that the next step would be going to philidelphia to be in a clinical trial for a new anti-nausea drug. i am so super excited and cant wait to go. she said the doctor is top notch, and for someone out of johns hopkins to say that, he must be good.

i hope you all are feeling great!
xoxo.

Wednesday, May 12, 2010

hello everybody,
i am so i sorry for the lack of posts. i was doing so well and then i got distracted. ive recently been feeling shitty since i got my period. bleh!
but good news. on monday i went to see dr. lee at johns hopkins once again. it was so great to see her, she is such a doll. i highly recommend her to anyone. its worth the long drive to go see her, she literally is the best. she thinks everything i am doing is great and that i am improving a lot since being on the domperidone. we've had to up the dosage to two pills four time a day. and its really seemed to help. i felt great until, like i said, i got my period and my hormones went outta wack. but hopefully we will continue to move in the right direction until i get out of being so sick. I high hopes for the future and to be able to go back to school next year. HOORRAY!

hope you all are feeling well.
xoxo.

Saturday, April 3, 2010

yesterday was brillant.

hello my lovely reader,
so i have the most amazing news. dr lee is so ridiculously amazing. i was so happy i cried after how positive and confident she was about helping me, and FIXING me. she basically said to screw the low fiber diet. she said you always want to go for low fat, but when you are feeling sick to use a blender as a second stomach. she said that you cant always trust your teeth to grind up your food, so use a blender. fruit and veggies, to make smoothies and soups. liquids have always been easier for me to keep down so she said that it is perfect. keep it simple.
she also is having use get the medicine domperidone. it is not FDA approved here in the US but she assured us that the reason is the economic state, and not the actual medicine. it does not cross the brain so there are no side effects like reglan. she we have to buy it online, and you dont need a prescription.
im so excited and have new hope about beating this and feeling better. im so glad we went to see her and will be going down again in 5 weeks.
i am so excited to start on this new path toward feeling good.
xoxo.

Wednesday, March 31, 2010

on my journey.

helllo loves,
so tomorrow is the start of the big trip to baltimore to see dr. linda lee. we are leaving around 9am, dropping off the pups, and going down. im so sad that my gemma has to stay at the kennel its nearly bringing me to tears. i know i will cry when we drive away, and when i go to bed without her.
the appointment i not until 9 am friday morning, but we'd figure we'd make the best out of the journey and have some fun. i cant wait to eat some crab since i can and its one of my favorite foods. im very excited, minus the fact that i wont have my boyfriend or pup pup.
i'm very excited excited to see want dr lee has to say. especially since recently ive been throwing up a ridiculous amount. like tonight driving to drop off my boyfriend i threw up three times, and three of my biggest throw ups to date. i cant even believe i had that such junk in my stomach. its awful. puking on the side of the road is not particularly fun, especially when youre puking your life out.
i will blog every once of information i get on friday, and about everything she says.
wish me luck my dear friends and stay healthy.
xoxo.

Friday, February 19, 2010

Johns Hopkins.


hey everybody!
so recently after my gastroparesis diagnosis, and my scope my doctor suggested that our next step was to go to the big leagues, so somewhere like Cleveland Clinic or Johns Hopkins.
so my mom has been doing A LOT of research and phone calls, and thinks Johns Hopkins is the best place to look. so we found an M.D. there, Dr. Linda Lee, who we've made an appointment with April 2nd. Ironically good friday.
Dr. Lee is the director of the John Hopkins Integrative Medicine & Digestive Center. She is also (and exactly what we need) the clinical director of gastroenterology and hepatology. She led a clinical practice on complex cancer patients who had liver or gastrointestinal issues.
I cannot wait to go and to meet her and to see what she can do for us. This is very exciting and she looks so cute!




hope you all are feelin good! :)

xoxox.