dear readers,

i know that its almost been a month since my last post, and i am so truly sorry for that. things have been up and down, like usual. recently, for the past couple days, i have been feeling awful. i was up all night last night throwing up things from 3 o'clock that afternoon. not fun. we went to the temple university medical center for another gastric emptying test a couple weeks ago. it was six hours long and not that fun. during the test the tech said everything was moving through fine. WTF? apparently it was a mostly normal test except for when the liquids went through? this makes no sense to me, especially since recently ive been throwing up things at night that i ate for breakfast. its so frustrating and im not sure what this means now. all i know is that i an so incredibly tired of being ill all the time. i just want to be normal, live a normal carefree life. im so very tired of having to watch and worry about everything i do, put in my mouth, and taking all of my medicine. im so tired of the comments and the lack of care since this has gone on so long. people have seemed to forget about my feelings and think just because its gone on this long and that i may seem happy on the inside, that im not being killed on the inside. its so frustrating but i have to live with it.

hope you guys are feeling good.

xoxo.

hello everyone,

so great news. last time we saw dr. lee she suggested we go see a doctor in philadelphia who is doing a clinical trial. so that was our next step. it took forever but we finally got an appointment for dr. parkman at temple medical center. he is a big shot and such a dear. he told me that i was too young for the trial but that there are many more options for my nausea. hooray! some of the greatest news ever. he put me on this patch that i will wear for nausea (not sure of the name). im going to start it soon so ill fill you in then!

hope everyone is feeling great!

xoxo.

hello dear readers,

so i have big news. i just started trying acupuncture. you know where the poke needles in special spots to make you feel better. and I LOVE IT! its so relaxing and it doesnt hurt a bit.

Acupuncture is a component of traditional Chinese medicine that originated in China over 5,000 years ago. It is based on the belief that living beings have a vital energy, called "qi", that circulates through twelve invisible energy lines known as meridians on the body. Each meridian is associated with a different organ system. An imbalance in the flow of qi throughout a meridian is how disease begins. Acupuncturists insert needles into specified points along meridian lines to influence the restore balance to the flow of qi. There are over 1,000 acupuncture points on the body.

one of my GP friends said it helped her so much! ive only gone twice but im inlove with it. after i feel so great, my energy is up and i feel like a new woman. i do wish that i could be a part of the GP acupuncture study going on at johns hopkins but i cannot make that trip even more often. but i love my acupuncturist and i love the acupuncture itself. i highly recommend it to any person who any sort of pain or anxiety.

hope everyone is feeling good.

xoxo.

good evening my sweet readers,

i want to keep up with this blog so badly so im going to try my best to blog frequently. nothing new or exciting has happened since the last post. running has seemed to really help my stability, strength, and endurance. little by little i am gaining back the strength i once had (as a dancer). im hoping to be in good shape in the next 2 weeks when the danceline/colorguard band camp begins. i can only describe it as hell to me, waking up very very early, doing vigorous activities from 8:30 am to 4:30 pm, and being out all that time in the hott hott weather. im not looking forward to it, or the way my stomach will handle it. but this is what the running is for and hopefully ill be better off come camp time. i hope everyone reading is feeling good. my best GP friend from england is not doing so well. she is permanently hospitalized because she has lost so much weight, and cant keep food in. i feel so awful for her and i wish so badly that i could go be with her at the hospital. unfortunately she lives across the atlantic ocean. so a prayer goes out to her and all of you suffering for this horrid disease.

feel good today.

xoxo.

hey everybody,

i hope all is feeling well. i sure am not. since the last post i have still struggled with my stomach, and throwing up. i just cant seem to get out of this slump. its terrible. this hasnt happened in such a long time.

so today is day 1 of my "self- endurance training" a.k.a. me running everyday. ive heard from a lot of GPers that running and being active helps their stomach. now i couldnt handle doing dance for more than an hour but right now i need to build up my strength and endurance for this upcoming year of danceline//colorguard. Its my last year and i made captain so i need to be able to do everything im asked. so im going to go for a run//walk everyday. im really hoping that itll work out for the best.

stay strong.

hello everybody,

i cannot express my apologies that i haven't posting for a month now. things have been hectic and ive been so very busy. but an update for ya, last wednesday we traveled down again to baltimore to go see the lovely Dr Linda Lee. She was great and was so happy to hear of my progress. I've gained 3 pounds and have been eating regularly. but lately i have been in a terrible two week slump of feeling nothing but crappp. all in all she seemed exstatic about my progress and suggested me re-trying phenergan. it is an anti nausea medicine ive used before, but it just made me too sleeppy with little effects. so im going to give it a try again and see what'll happpen.

she also suggested that the next step would be going to philidelphia to be in a clinical trial for a new anti-nausea drug. i am so super excited and cant wait to go. she said the doctor is top notch, and for someone out of johns hopkins to say that, he must be good.

i hope you all are feeling great!

xoxo.

hello fellow GP-ers.

i have finally been feeling good consistently. its so very nice that the 8 pills of domperidone a day is finally seeming to work. its a miracle drug, and bullshit that its not FDA approved. utter bullshit. but feeling decent has been going my way, welll until two nights ago. after eating a bit too many chocolate covered pomegranates, i was throwing up so so so hard, that i actually couldn't breathe. i had just major inflammation of my damaged vocal chords and failing thyroid glands that i couldn't breathe. nothing like this has ever happened to me. it was quite frightening. so of course the boyfriend called 911, since of course i was at his house. mom and dad rushed over and the ambulance took me to the ER. win! there they took xrays of my lungs and throat. everything was okay and finally the breathing became close to normal and i could go home. what a pain in the ass this disease is. so many things all combined really screws with my life. but on a good note, i will be leaving tomorrow for daytona beach florida. my heaven and favorite place on earth. so i cant wait to get away, relax and soak up the sun.

hope everyone is feeling good.

xoxo.